WELCOME TO HOLLAND

c1987 by Emily Perl Kingsley. All rights reserved

I am often asked to describe the experience of raising a child with a disability - to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It's like this......

When you're going to have a baby, it's like planning a fabulous vacation trip - to Italy. You buy a bunch of guide books and make your wonderful plans. The Coliseum. The Michelangelo David. The gondolas in Venice. You may learn some handy phrases in Italian. It's all very exciting.

After months of eager anticipation, the day finally arrives. You pack your bags and off you go. Several hours later, the plane lands. The stewardess comes in and says, "Welcome to Holland."

"Holland?!?" you say. "What do you mean Holland?? I signed up for Italy! I'm supposed to be in Italy. All my life I've dreamed of going to Italy."

But there's been a change in the flight plan. They've landed in Holland and there you must stay.

The important thing is that they haven't taken you to a horrible, disgusting, filthy place, full of pestilence, famine and disease. It's just a different place.

So you must go out and buy new guide books. And you must learn a whole new language. And you will meet a whole new group of people you would never have met.

It's just a different place. It's slower-paced than Italy, less flashy than Italy. But after you've been there for a while and you catch your breath, you look around.... and you begin to notice that Holland has windmills....and Holland has tulips. Holland even has Rembrandts.

But everyone you know is busy coming and going from Italy... and they're all bragging about what a wonderful time they had there. And for the rest of your life, you will say "Yes, that's where I was supposed to go. That's what I had planned."

And the pain of that will never, ever, ever, ever go away... because the loss of that dream is a very very significant loss.

But... if you spend your life mourning the fact that you didn't get to Italy, you may never be free to enjoy the very special, the very lovely things ... about Holland.

 

Special Child

by Sharon Harris

You weren't like other children,
And God was well aware,
You'd need a caring family,
With love enough to share.

And so He sent you to us,
And much to our surprise,
You haven't been a challenge,
But a blessing in disguise.

Your winning smiles and laughter,
The pleasures you impart,
Far outweigh your special needs,
And melt the coldest heart.

We're proud that we've been chosen,
To help you learn and grow,
The joy that you have brought us,
Is more than you can know.

A precious gift from Heaven,
A treasure from above,
A child who's taught us many things,
But most of all - "Real Love"

 

~~~~~~~~~~~~~~~

 

You Are My Blessing

Anonymous


You are my blessing 
The love of my life
You are the reason
I have no strife

You bring me happiness
You bring me light
Your smile reflects
A joy so bright

 

~~~~~~~~~~~~~~~

 

Slow Dance

The below poem was written by a terminally ill young girl in a New York Hospital

 

Have you ever watched kids on a merry-go-round?

Or listened to the rain slapping on the ground?

Ever followed a butterfly's erratic flight?
Or gazed at the sun into the fading night?
You better slow down,

Don't dance so fast.

Time is short.

The music won't last.

 

Do you run through each day on the fly?
When you ask How are you?
Do you hear the reply?
When the day is done do you lie in your bed

With the next hundred choresrunning through your head?
You'd better slow down,
Don't dance so fast. 

Time is short.
The music won't last.

Ever told your child, we'll do it tomorrow?

And in your haste, not see his sorrow?
Ever lost touch, let a good friendship die

'Cause you never had time to call and say, "Hi"

You'd better slow down, 
Don't dance so fast.  

Time is short.
The music won't last.

When you run so fast to get somewhere
You miss half the fun of getting there.
When you worry and hurry through your day,
It is like an unopened gift.... 
Thrown away.
Life is not a race. 
Do take it slower
Hear the music
Before the song is over.

 

 

Quotes to make you think...

We can only be said to be alive in those moments when our hearts are conscious of our treasures.  Thornton Wilder

 

A strong positive mental attitude will create more miracles than any wonder drug.

Patricia Neal

 

Most folks are about as happy as they make up their minds to be. Abraham Lincoln

 

Happiness depends upon ourselves.  Aristotle

 

I am still determined to be cheerful and happy , in whatever situation I may be; for I have also learned from experience that the greater part of our happiness or misery depends upon our disposition, and not upon our circumstances.  Martha Washington

 

The purpose of life, after all, is to live it, to taste experience to the utmost, to reach out eagerly and without fear for newer and richer experiences.  Eleanor Roosevelt

 

Difficulties are opportunities to better things; they are stepping stones to greater experience.
Brian Adams

 

Remember there's no such thing as a small act of kindness. Every act creates a ripple with no logical end.   Scott Adams

 

~~~~~~~~~~~~~~~

 

God Sent to Me an Angel

By Paul Dammon 11/96

 

God sent to me an angel,
it had a broken wing.
I bent my head and wondered
"How could God do such a thing?"

When I asked the Father
why He sent this child to me,
the answer was forthcoming,
He said "Listen and you'll see."

"My children are all precious,
and none is like the rest.
Each one to me is special,
and the least is as the best.

I send each one from Heaven
and I place it in the care
of those who know my mercy,
those with love to spare.

Sometimes I take them back again.
Sometimes I let them stay.
No matter what may happen
I am never far away.

So if you find an angel
and you don't know what to do,
remember, I am with you,
love is all I ask of you."

 

~~~~~~~~~~~~~~~

 

I Am The Child

Author Unknown

 

I am the child...  You often pity me, I see it in your eyes.  You wonder how much I am aware of--I see that as well.  I am aware of much--whether you are happy or sad or fearful, patient or impatient, full of love and desire, or if you are just doing your duty by me.  I marvel at your frustration, knowing mine to be far greater...

 

What I give you is so much more valuable--I give you instead opportunities.  Opportunities to discover the depth of your character, not mine; the depth of your love, your commitment, your patience, your abilities; the opportunity to explore your spirit more deeply than you imagined possible.  I drive you father than you would ever go on your own, working harder, seeking answers to your many questions with no answers...

 

I am the child who cannot walk.  The world seems to pass me by.  You see the longing in my eyes to get out of this chair, to run and play like other children.  There is much you take for granted.  I want the toys on the shelf, I need to go to the bathroom, oh I've dropped my fork again.  I am dependent on you in these ways.  My gift to you is to make you more aware of your great fortune, your healthy back and legs, your ability to do for yourself.  Sometimes people appear not to notice me; I always notice them.  I feel not so much envy as desire, desire to stand upright, to put one foot in front of the other, to be independent.  I give you awareness. I am the child who cannot walk.

 

                                                    Email questions, comments, concerns to rally4reagan@gmail.com